Relief flooded through me this afternoon as I finished up this week’s phone appointment with my doctor. It was probably the best appointment I’d had in months — not because I’m feeling better, but because I was actually heard, taken seriously and respected.
I have a rare disease called Autoimmune Pernicious Anemia; my doctor even admitted today that I was the first patient she’d ever diagnosed with this (though Vitamin B12 deficiency is common). It’s been a bumpy road since diagnosis two months ago when my Vitamin B12 levels were undetectable, but it started to get better as soon I began my own extensive research. This has led to chatting with others around the world going through the same struggles and learning from each other.
I’ve learned that I will require Vitamin B12 injections for the rest of my life since my body is not able to absorb it. Different people require different frequencies of B12 injections to feel better, and a few rare people get worse before they get better (like me). I’ve been getting weekly injections at the hospital, but now I’ll be getting them more frequently and hope for improvement. Vitamin B12 is incredibly important as it fuels your body; it is energy.
Even though I am terrified of needles, I have been lobbying my doctors to allow me to self-inject. This is hugely important since these injections will now be part of the rest of my life. I must overcome my lifelong fear of needles to take control of this disease (and because I’m too fatigued to go to the hospital to get jabbed every other day). This is a very scary step for me, but my doctor agreed to move forward with me on it today. I immediately felt such incredible relief, swiftly followed by hope that I might actually feel better (and then of course terror that I’ll actually have to stab myself with a needle).
Today’s #OneGoodThing was my doctor really coming through for me and supporting me in self-injecting and more frequent injections, as well as appreciating my new depth of knowledge on this disease.
Also, today marks the end of the first quarter of the year and the completion of the first 25% of my #OneGoodThing project!
Day 91 of 366.