Apocalyptic ride to the hospital

Today was my 27th immune-suppressing IV infusion and I found myself as nervous as I was for my very first infusion. Nothing about my appointment has changed, except that I now have a port implanted in my chest that makes the entire process smoother and saves about an hour. The added anxiety over today stemmed…

Finding cheer in the end of March

March has felt like one of the longest years—I mean months—ever. As an immunosuppressed family, we’ve been in isolation since late February. Thankfully, Mama and I like being at home, but we miss spending more time outdoors and seeing our neighbors’ faces. Today our spirits were brightened by a wonderful singing family in the U.K.…

New cowl scarf made by Mama!

Mama has been spending some time under quarantine on knitting projects—and today she finished putting the buttons on this gorgeous cowl scarf she made for me. I absolutely love it and can’t wait to wear it! Today’s #OneGoodThing with Mama was my beautiful, new handmade cowl scarf! Thanks, Mama!!! For those interested, the pattern was…

Virtual pajama party

When the shutdown began, a friend remarked online that her pajama selection was lacking—thus starting a flurry of comments from mutual friends with links to favorite PJs. I knew immediately this merited a virtual pajama party and reunion. We waited until everyone who needed had received their new pajamas and tonight was the big night.…

The view from quarantine

Isolation and intense cleaning are not new to us. Though California’s Shelter-in-Place order has only been in effect for 1.5 weeks, today marks one month since we’ve left our home. We’ve not gone for walks or been out in the world at all. The only two exceptions were when I left to go to my…

Beginning our 2020 garden

We began planting our summer veggie garden from seeds today—and we’re eager to see our zucchini, cucumber, basil, and more grow! The weather is still too cold at night to plant directly into our garden box so we’re starting the seeds in these tiny biodegradable pots, which I’ll then plant when they’re ready. Today’s #OneGoodThing…