Another infusion done

My immune system has been attacking my guts lately as I struggle with a Vitamin C deficiency, in addition to my Vitamin B12 deficiency. So I was really looking forward to my 13th Crohn’s chemo infusion today because it shuts down my overactive immune system. Exhaustion-wise, I feel like I was hit by a truck.…

Surviving the first Monday of 2019

I typically don’t drive for more than 10 minutes at a time, because I find it physically difficult. However, today I had to take Mama to an appointment about a two-hour drive away. It took every last “spoon” we had, but we made it, collapsing in our beds upon our arrival home. Mama woke up…

Here we go again

For months I’ve agonized over whether or not to continue writing about #OneGoodThing each day, a project which started as a New Year’s resolution three years ago today. I knew with clarity that I wasn’t done last January 1st, same as the January 1st before that. But this year, I considered ending the series at…

Happy festival of lights!

Mama and I have decided to postpone our lighting of the 7th and 8th night Chanukah candles, until a time when I can stand the sight of light again. My migraine has not yet released its grip on my skull. Today’s #OneGoodThing was a happy Chanukah with Mama! Here’s wishing you a happy festival of lights! Day…

She’s got my back

A migraine triggered a Crohn’s flare for me today, leaving me mostly miserable. That is, until sweet Paisley climbed into my bed and nestled herself firmly against my back. It was just the comfort I needed. Today’s #OneGoodThing was Paisley’s big heart! Day 342 of 365. And Day 1,073 in a row (here’s the first 366 & the following 365)!  1…

Narrow approval

A slight fever nearly prevented me from receiving my 12th IV infusion for Crohn’s Disease today. The treatment works by suppressing my immune system, which can make it dangerous to receive if my body is already fighting an infection. I haven’t been feeling great lately, but I finished my latest antibiotics course two weeks ago,…

Afternoon walk in our neighborhood

Today’s #OneGoodThing was taking a lovely, afternoon walk in our neighborhood with Mama and Paisley. It felt good to go for a walk again, after all the walking of our trip. All three of us were happy to stretch our legs after jet lag and bad colds took their toll. As a bonus #OneGoodThing, here’s a beautiful…