Comfort in knowledge 

Today was one of those days where it was challenging to identify #OneGoodThing. I found it challenging to do anything. This is part of my autoimmune pernicious anemia so it’s not like it’s unexpected. Just unpleasant, to put it mildly.

I have put my journalism background to use in researching all I can learn about this chronic illness. At times, what I learned troubled me. But lately I have found an online support group for people around the world with the same issues. (The group just hit 10k members worldwide!) It has been a great comfort to chat with others and share knowledge and challenges.

Today I learned that Vitamin B12 deficiencies are common and many are now being classified as Pernicious Anemia (pernicious means deadly, PA for short). However, the type of PA I have is due to a problem in my autoimmune system (it’s called positive antibody to Intrinsic Factor, which means my body blocks the absorption of B12), and it is apparently rare. I’ve plenty more to learn, but I’m so grateful to have found this group!

Today’s #OneGoodThing was comfort in knowledge.

Day 80 of 366.

16 comments

  1. […] I have a rare disease called Autoimmune Pernicious Anemia; my doctor even admitted today that I was the first patient she’d ever diagnosed with this (though Vitamin B12 deficiency is common). It’s been a bumpy road since diagnosis two months ago when my Vitamin B12 levels were undetectable, but it started to get better as soon I began my own extensive research. This has led to chatting with others around the world going through the same struggles and learning from each other. […]

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