As of today I have successfully given myself a B12 injection every day for a week! And I can finally report ACTUAL PROGRESS!
B12 injections aren’t new to me anymore. I started weekly injections when I was first diagnosed with autoimmune pernicious anemia in the first few days of February. After 2 months of weekly jabs — and mostly just getting worse, my doctor agreed to alternate day self injections for 2 weeks. That was the moment I had to confront my lifelong needle phobia. After seeing a big difference between weekly and alternate day jabs, my doctor let me try daily. It’s still not easy to stick myself with a needle every day and I’ve had a bad fumble, but I’ve picked up some tips and tricks along the way to make it better.
I’ve still got a long way to go to feel like myself again, but I can feel some of my strength return. It’s like a glimmer of hope, and I am so grateful that my doctor let me try this dosage (since you can’t overdose on B12). I’m so relieved to finally find a dosage that yields real results. Because my B12 level was undetectable at diagnosis, my doctors told me it’d be 6 months before I was feeling well again. But now with daily jabs is the first time that has seemed like a possibility. Previously progress was minute, at best.
Today’s #OneGoodThing was completing a week of daily self injections and seeing real progress in my recovery.
Day 119 of 366.
You can get little capsules that are inserted under the skin that give a steady release of contraceptive hormones that lasts for months. Can you investigate the possibility that you could get a capsule that releases vitamin B12 the same way?
I’ve never heard of that, but I’ll look into it. Thanks Bert!
Yay. So happy for you! Im really gald you arebstarting to feel a difference!
I’ve been on daily jabs for about 3 weeks. I’ve made huge progress, as I could barely get out of bed from orthostatic intolerance. I had stopped B12 for only one week (!). Before that I had been injecting every other day with B12 purchased, ahem, elsewhere. Stopped B12 as several doctors all said I was getting too much (including a highly respected specialist at Stanford). After the day that I hit rock bottom, I decided I was going to take control of my own health and start injecting every day and ignore what my doctors and husband had to say about it.
Continues to be a long road to recovery but yesterday things finally started looking up for me. I actually swam a couple of laps at my health club, it’s been over a month since I’ve been in the pool. And I received an email from my GP that she was prescribing B12 daily for me. I don’t know what turned her around but I’ll take it. My insurance is Kaiser, a notoriously difficult system to deal with when you have an unusual health issue like pernicious anemia.
Am I back to normal? No, I’m a long way from it as I still have pain in my feet walking (had it long before PA was finally diagnosed). But I am improving a little bit every day, with every jab I give myself.
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Hi Tracy! Thank you so much for sharing your story! I totally get it about dealing with Kaiser because I’m in the same boat! Congratulations on your major progress — both in the pool and with your GP!!! I’ve got to beg mine again tomorrow morning to continue my daily jabs. I’ve been on them for 5 months, but I still suffer from neurological weakness on my right side and a whole crazy long list of symptoms. I’m sorry to hear you’re not back to normal yet either. Have hope! Apparently recovery from B12 deficiency is notoriously slow. Since you went to Stanford, are you in Kaiser NorCal? I am and my doctor told me I was the first patient she’d ever diagnosed with PA! That was what sent me looking for other resources. Wishing you the best of luck! And let me know if you’d like to chat privately! You might be the most local person I’ve ever “met” with PA. Most people haven’t heard of it!
Hi Gabriana! I’m in Kaiser NorCal, too. Let’s chat privately.